Mr. Michael Jabez Foster
To ask the Secretary of State for Health how many(a) children and (b) adults are currently suffering from Proteus syndrome; what is their age profile; and what training is given to paediatricians and others in the NHS to recognise and treat the condition. 
§ Mr. Hutton
The information requested is not held centrally. Paediatricians are initially in the lead in diagnosing this rare disorder and in working through the options available for treatment—which can range over a number of specialist services depending upon the severity and manifestation of individual cases. Diagnosis and treatment options for Proteus syndrome form part of paediatricians' education and training.